Examples of how Self-Directed Support is used
Every package is unique to each child or young person’s needs as well as the needs of their family, so each package varies and what works well for one family may not necessarily be right for yours. As children grow their needs will change so packages are reviewed annually. Discussion takes place about outcomes which have been achieved and outcomes which may not have been achieved and the reasons for this. At the time of review there will be discussion around how it is working for both the supported person and their family as well as looking at whether or not the supported person still meets the criteria.
Andrew has a diagnosis of autism and a moderate learning disability. He lives with his parents and brother. Dad works full time and the majority of mum’s time is taken up caring for Andrew which leaves very little time for the family to spend any quality time together. Andrew is often physically aggressive towards his family and has significant sleep difficulties, these are added pressures to everyone in the home.
Following an assessment of need and discussion with their worker Andrew’s parents felt that they would benefit most from a package where they are responsible for managing their own budget via the payment card. Specific outcomes are identified and included in Andrew’s support plan, these include him working with a support worker to attend activities in order to encourage him to become involved in the community, improve his social skills and develop independence skills. This also includes a specific number of overnight respite breaks for the family throughout the year, this is arranged by the family on dates which work best for them. Andrew attends an activity group during the school holidays as this is an opportunity for him to socialise and have fun with his peers as well as respite for his family. This package meets both Andrew's needs and his carer's needs.
Rachel has been diagnosed with cerebral palsy and epilepsy. She lives with her mum and does not have any other family living nearby. She needs a high level of supervision due to mobility issues and frequent seizures. This is an additional pressure for mum as she rarely receives any respite. Rachel’s mum does not feel that she could cope with the responsibility of managing an SDS budget. Following an assessment of need and discussion with Rachel’s worker it was agreed that her SDS budget would be managed by us.
Rachel receives support from a dedicated support worker with whom she already has a relationship. This allows her to attend activities she enjoys and helps to build her confidence as she sometimes struggles with being away from mum. This also acts as respite for mum and therefore meets both Rachel's needs and her carer's needs.